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We invite you to join with us in the work of the Tarlov Cyst Disease Foundation. We welcome your knowledge, special abilities and assistance in helping us further the objectives of the Foundation.
One important way to help is to participate in our surveys. If you had surgery or other procedures to treat Tarlov cysts, you have important information to share with us. If you are newly diagnosed and have not yet had any treatment, your information regarding your symptoms,location of your cyst(s), your geographic location, your age at onset and significant events at onset of your symptoms are all very important.We will collect this cumulative information and put it into a scientific database. The analysis from these surveys, along with those conducted with physicians, will bring researchers one step closer to finding the cause, improved treatment and a cure for Tarlov cyst disease.
Another way to join us is by becoming a member of the Foundation or by making a donation. Becoming a member of the foundation is a choice and not a requirement, just as is the choice to make a donation to the foundation. The Foundation's website is free for all to view and become better informed about Tarlov cyst disease as well as to learn about the Foundation's efforts on behalf of all those with Tarlov cysts. Membership participation is one way of partnering with the Foundation, and membership fees will be used to fund and promote research and education. We will welcome your assistance in making a difference for the future for all those diagnosed with symptomatic Tarlov cysts.
"Philanthropy ... is a natural act of giving, prompted by a spirit of caring and concern."
Current Membership Benefits
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Committee involvement opportunities to support the Foundation and become actively involved
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E-Notes – E-mailed news updates with “behind the scenes” news and activities, such as reports on physician's collaboration activities, research dialogue, the board's contacts with research institutes, conferences, board meetings, grant proposals and applications, member news, etc. This information will not be available on the Foundation's website.
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Member/Board liaison positions, whereby members will provide ideas and suggestions for the Foundation's
Board of Directors
Future Membership Benefits
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Foundation Membership Meetings (regional or state) and Tarlov Cyst Disease Foundation National Conferences with education programs for members and their families and a social gathering sponsored by the Tarlov Cyst Disease Foundation
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Sharing printed materials, prepared by the Foundation, with your physicians' offices and others in your community to help us to spread the word
If you wish to join with us to further the Foundation's vision of a future in which Tarlov Cyst Disease is well understood, accurately diagnosed and easily treated, please complete the Membership and Donation Form. We welcome YOU and your involvement!
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